Page 1: Survey Information

General Information

This study aims to investigate the impact of the COVID-19 pandemic on people with endometriosis.

We appreciate your interest in participating in this questionnaire/online survey. Please read through this information before agreeing to participate by ticking the 'yes' box below. You may ask any questions before taking part by contacting the researcher (contact details below).

We (the University of Oxford and Endometriosis UK) are investigating the impact of the COVID-19 pandemic on people with endometriosis.

You will be given some questions to read and then answer. We estimate that it should take about 20 minutes. No background knowledge is required.

Do I have to take part?

Please note that your participation is completely voluntary. If you do decide to take part, you may withdraw at any point during the questionnaire for any reason, before submitting your answers, by pressing the 'exit' button or closing the browser.

How will my data be used?

Your answers will be completely anonymous, and we will take all reasonable measures to ensure that they remain confidential.

Your data will be stored in a password-protected file and may be used in academic publications. Your IP address will not be stored. All questions are optional. Research data will be stored for a minimum of 3 years after publication or public release.

Who will have access to my data?

JISC online surveys is the data controller with respect to your personal data and, as such, will determine how your personal data is used. Please see their privacy notice here [https://www.jisc.ac.uk/website/privacy-notice]. JISC will share only fully anonymised data with the University of Oxford, for the purposes of research. Responsible members of the University of Oxford may be given access to data for monitoring and/or audit of the study to ensure we are complying with guidelines, or as otherwise required by law.

This project is being undertaken as part of a higher degree (DPhil). The lead researcher is Claire Lunde, who is attached to the Department of Women's and Reproductive Health at the University of Oxford. This project is being completed under the supervision of Prof Katy Vincent and Prof Elaine Fox.

This project has been reviewed by, and received ethics clearance through, the University of Oxford Central University Research Ethics Committee (R69636/RE001).

Who do I contact if I have a concern about the study or I wish to complain?

If you have a concern about any aspect of this project please speak to Claire Lunde (claire.lunde@spc.ox.ac.uk) or her supervisor Katy Vincent (katy.vincent@wrh.ox.ac.uk), and we will do our best to answer your query. We will acknowledge your concern within 10 working days and give you an indication of how it will be dealt with. If you remain unhappy or wish you make a formal complaint, please contact the Chair of the Medical Sciences Inter-Divisional Research Ethics Committee who will seek to resolve the matter as soon as possible:

Email:ethics@medsci.ox.ac.uk

Address: Research Services, University of Oxford, Wellington Square, Oxford OX1 2JD

1.1. Please note that you may only participate in this survey if you are 18 years of age or over. Please tick this box if you are over the age of 18. Required
2.2. If you have read the information above and agree to participate with the understanding that the data you submit will be processed accordingly, please check the relevant box below to get started. Required